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Cystic Fibrosis Care Center
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CFF Information


North Shore-LIJ Health System
http://www.northshorelij.com/

Cohen Children's Medical Center
http://www.northshorelij.com/ccmcny/home

Cystic Fibrosis Foundation
www.cff.org

CF Voice
www.cfvoice.com

All the foundation's patient assistance programs can be found online at
http://www.cff.org/LivingWithCF/AssistancePrograms/

CF Patient Assistance Foundation (CFPAF)
http://www.cfpaf.org/

Living With CF Webcasts
http://www.cff.org/LivingWithCF/Webcasts/

Become an advocate for CF, register to receive the CF Advocacy Newsletter at http://www.cff.org/GetInvolved/Advocate/MyProfile/ or contact the NY State Advocacy Chair, Melissa Shiffman, at cffnyadvocacy@gmail.com

To help you navigate the complex world of health insurance and healthcare coverage, the CFF Patient Assistance Resource Library (http://www.cff.org/LivingWithCF/AssistanceResources/Library/) offers a range of useful information, including:
  • Sample letters of medical necessity and prior authorization;
  • How-to guides to navigating common insurance obstacles;
  • Templates for insurance appeals, exceptions and reconsiderations;
  • CF care guidelines;
  • Evidence-based medical journal articles; and
  • White papers for medical professionals.
CFfone is a network of young people around the world who have cystic fibrosis. Through CFfone you can communicate and share with others who understand what life with CF is all about. www.cffone.com Learn more about CFfone here http://www.cffone.com/about


Information for Teachers




Useful nutrition links:


Health Insurance Coverage Information


Healthcare.gov
www.healthcare.gov

Cobra
www.dol.gov/ebsa/cobra.html

Healthcare Reform
www.healthreform.gov/newsroom/new_patients_bill_of_rights.html

Go to www.nyhealth.gov to get the most recent Medicaid updates and information regarding the Medicaid Redesign Team (MRT) Proposal #11

Pharmacy and Medicines





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